Survivor Care Plan Project Team Meeting

Wednesday, May 7, 2008

1:00 – 2:30 pm

Meeting Objectives:

Ø       Determine needs to meet LAF grant deadline June 20

Ø       Discuss Survivor Care Plan recommendations from Cancer Summit

Ø       Discuss Results of Cancer Summit

I.                    Introductions

II.                  Lance Armstrong Foundation Community Projects Grant – Jody Jackson

a.       Background

b.       Next Steps

III.                ACS Survivorship Advisory Group - Freda Carlson

IV.                Summit Breakout Session Progress - Etta Erickson

a.       Progress made

b.       Survivor Care Plan Drafts

c.       What is our Goal?

d.       How can we get there?

V.                  Announcements

a.       Upcoming Conferences

b.       Group Leaders or Co-Leaders

Meeting Location:

Meeting Room, Richard M. Schulze Family American Cancer Society Hope Lodge

2500 University Ave SE, Minneapolis, MN

Attended: Jody Jackson, Etta Erickson, Melisa Panszi Riebe, Kathy McGovern, Lindy Yokanovich, Kelly Porter, Paula Colwell, Mary Jo Nissen, Freda Carlson, Kim Ness, Mary Hallman

LAF grant proposal – Jody Jackson

            Our LOI was well received and we’ve been asked to submit a full proposal

            3 main objectives

                        Determine essential elements for MN SCP

                        Create short term care plan – address medical, emotional & practical needs

                        Create long term care plan – address medical, emotional & practical needs

            Next steps

                        Create the team to write the grant

                        Could focus groups be pulled from our various organizations?

            Lindy Yokanovich & Cancer Legal Line also applying for LAF grant

American Cancer Society’s Survivorship Advisory Group – Freda Carlson

            ACS Mid-Atlantic region is also working on a SCP

                        Karen Babb in Virginia is heading up the effort

They’ve created a plan, obtained Dr feedback, working on patient feedback, will do focus groups

We hoped they’d share their draft but they will not at this time

Cancer Summit 2008 Survivorship breakout session was highly successful

Our SCP should be portable, not unwieldy, customizable,

Divided into 2 parts: 1)Basic info & 2)Additional info

 –or- 1)Short term & 2)Long term

We could include a checklist of things to think about with ability to give additional info

Look at Interagency Transfer Form model

Included in every chart from beginning because they know the patient will eventually be discharged

Introduce SCP early in process: at initial oncology visit

Patient Responsibility, Ownership, Empowerment

Goal: Facilitate Accurate Communication, normalizes experience

Packet of info

Paula Colwell shared the binder & tool she created for use at Virginia Piper

Everyone is different with different needs so we’ll need different plans – we can’t standardize

SCP will:

not be a duplicate of medical records

be patient & family focused

change over time

How can our SCP meet the needs of Survivors, Oncologists, Primary Care Physicians

Logistical Questions:

            When to introduce?

            Who fills out what parts?

            When is it handed off?

            What size/how big?

Challenges of 1 size fits all: disease site, care setting, urban vs. rural

Anna will work to put the elements included in the SCP draft & from the Summit into the grid for our next meeting