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Meeting Summary 8-30-05

MEETING SUMMARY

In Attendance: 

Marva Bohen, Kris Oehlke, Roshan Paudel, Gay Lynn Richards, Mary Winnett

Janet Yee, Andrea Leinberger-Jabari, Elisabeth Atherly, Brenda Holden

          
Recorded by:
Gay Lynn Richards

                                                                                                                                   

AGENDA ITEM

KEY POINTS RAISED IN DISCUSSION

DECISION/ACTION

Welcome & Introductions

 

 

 

Articles

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Disease Control Newsletter, May/June

MN Cervical Cancer Update

 

The Clinical Cancer Letter, Vol. 28 No. 8

High Cervical Cancer Rates Indicate Access Problems

 

 

 

Carin Perkins, MCSS, has applied for funding to research what factors/barriers may have been involved for women with a diagnosis of invasive cervical cancer in MN.

 

 

 

 

 

 

 

 

 

Family history as a co-factor for adenocarcinoma & squamous cell carcinoma of the uterine cervix.

New Members: Andrea Leinberger-Jabari, MN International Health Volunteers, & Elisabeth Atherly, Sage Outreach Coordinator

 

Pap screening rates in MN good but access to health care an issue for some communities.

 

High rates of cervical cancer indicate larger problem access to health care. Although over-all decline in deaths from cervical cancer, certain areas & populations experiencing high mortality. These include African American women in the south, Hispanic women near the Texas border, white women in Appalachia, American Indian women in the Northern Plains area, Vietnamese women, & Alaskan Native women. Recommendations include increasing outreach for the never/rarely screened women, use of female providers, use of navigators in healthcare systems, improving coverage & reimbursement work with communities with disparities, and adding research to study numerous factors that may contribute to cervical cancer mortality.

 

2 study populations

Costa Rica, ~ 8,500 screened with pap, pelvic, HPV & risk assessment.

~ 25% referred for colposcopy

~ 2% control referred

*116 women reported 1st degree relative with GYN cancer.

 


TOPIC

KEY POINTS RAISED IN DISCUSSION

DECISION/ACTION

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Digene

 

 

 

 

Information from National Organizations

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Roshan & Angie Graf from ACS met with Digene (produce HPV testing), would like to partner through public health channels and participate in outreach. They will also be meeting with Dr. Downs.

 

ASHA brocure

 

 

GYN Foundation

 

 

 

CD’s from NCI

 

Claire’s informal summary

 

East Coast, USA, ages 18 – 69, with diagnosis of cervical cancer insitu, invasive, adeno or glandular

124 adeno, 91 invasive, 41 insitu, 139 squamous

Control ~ 300 (random digit dial)

Conclusions included an increased risk if first degree relative had GYN cancer.

Stronger association to squamous than to adenocarcinoma. No difference in risk regardless if mother, daughter, or sister.

Costa Rica study increase risk equal for both < 35 years or > 35 years.

Take home message: familial factors increase risk of developing cervical cancer (may point to host factors or other vulnerability in the presence of HPV).

 

 

Will be asked to attend Sept meeting.  They have offered free HPV testing kits.  Possible funding HPV/Pap materials in other languages

 

 

Note difference in brochure for African American & Hispanic (more text/more illustrations)

 

Women can sign up to receive a mailed yearly reminder (but does not say where to go to get services)

Other various materials. (Gay is keeper of examples.)

 

Marva will review & summarize

 

No one method that works

Opportunist Paps

Outreach/education specific populations

Media channels specific & appropriate to community.

 

·         Still need a volunteer to liaison to National organization.

 

TOPIC

KEY POINTS RAISED IN DISCUSSION

DECISION/ACTION

 

 

 

 

 

 

Mini Team Updates

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Resources < 40

 

 

 

 

 

 

 

 

 

 

Flip Chart/Manual

 

 

 

 

 

 

Incorporating cervical info into F2F

 

 

 

 

Press Conference

January

 

 

 

Screening Resources

Women < 40

 

 

 

 

Title X (Federal $$)

In MN most of funding to Planned Parenthood, Teenage Medical Clinic & MDH

FPSP (State $$) will be cut by ~ 50% next year as new program Medicaid waiver in place

 

Needs revision & updating

Teaching manual excellent

Need to add HPV info

Group would like to secure funding (Digene?) for updating, adding HPV & having in other languages

 

 

Have identified key points to include, attention to matching style of current F2F text, will also include some info on HPV, abnormal Paps & F/U.  3 – 4 month timeline.

 

 

LATE BREAKING NEWS!!!

Dr. Downs has agreed to participate, will highlight disparities.

 

 

Mary, Gay & Mona Helgeson (Follow-Up Coordinator Sage) met with Diane O’Connor & Jennifer O’Brien about current resources through Title X & Family Planning Special Projects (FPSP)

 

 

FPSP requires outreach/education & some grantees do that exclusively.  Other grantees add this to methods services.

Medicaid waiver women need a SS# (can apply for 2 months of presumptive eligibility).

No money for outreach/education as waiver program is implemented. Clinic staff will need to be very knowledgeable about various resource options.

Marva would like Jennifer & Diane to speak at MOC. Elisabeth to coordinate.

 

 

 

 

 

 

TOPIC

KEY POINTS RAISED IN DISCUSSION

DECISION/ACTION

 

 

 

 

 

 

 

 

Intervention Development

 

 

 

 

 

 

 

 

 

 

 

 

 

Somali Women

 

 

 

 

 

F2F

 

 

 

 

 

Effectiveness of F2F

Some discussion of whether we know this model works.

 

F2F in African American Churches – Benita interested in using this approach.

 

In October, Jennifer & Diane will come to meeting.  Flow chart to be done to identify all the resources, where & what, & eligibility info.

·         This information will be vital to have on hand & provide to Women’s Health web page, Centralized Cancer Plan Information Portal & other locations for women.

 

 

Cervical education will be added as project develops.  MIHV also has Somali Healthcare Network grant (EHDI) will continue breast cancer focus & will incorporate cervical education.

 

 

La Clinica on Lake Street serves a large Hispanic population & increasing Somali population.  They have a Somali Health Educator.  Clinic very interested in using F2F as intervention model for both populations.

 

 

Proven model, first adapted 1998, rural Hispanic women.

2002 Pilots to test adaptability of model proven.

Roshan & Gay to present data at next meeting.

 

 

 

 

 

 

 

 

 

TOPIC

KEY POINTS RAISED IN DISCUSSION

DECISION/ACTION

 

F2F in African American Churches

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Next Meeting

 

Benita has had experience using F2F in the churches & Benita & Gay have had a good amount of experience using F2F in groups of African American women.

 

Focus groups conducted last year for Cancer Plan MN in North Mpls at NorthPoint & at Women’s Cancer Resource Center in South Mpls.

 

 

 

 

 

 

 

 

 

 

 

 

Marketing 101

 

 

 

September 27, 2005

10 AM – 12 Noon

NOTE THE TIME CHANGE

 

Group suggests possible focus groups or invite leadership of churches to informational meeting.  Pastors’ wives group?

 

Visit www.cancerplanmn.org to review focus group summaries: community forums

Gay will bring hard copies

Benita & Gay to meet to “flesh out” intervention for African American women.

 

May also want to brainstorm what other approaches may work. Are there other populations we should consider such as homeless women?

 

Elisabeth & Gay will begin to put together an “Outreach 101” that will have proven outreach techniques to give us a starting point.  Must be proven & supported in literature.

 

 

Some discussion that understanding marketing may help us market our “product.” Marva & Janet to look into this.

 

 

If you need hard copies of any articles, please contact Gay.