Meeting Summary 12-6-07
Quality of Life Meeting Summary
Date, Time & Location: Thursday, December 6, 2007, 12:30 – 2:00 p.m., American Cancer Society
In Attendance: Waddah Al-Refaie, Scott Cruse, Matt Flory, Debra Johnson-Fuller, Ken Joslyn, Bonnie Lafromboise, Mary Langevin, Elizabeth Moe, Dan Mulrooney, Anna Ourada, Mary Jo Nissen, Wendy Rahn, Kim Robien, Kris Ann Schultz, Kathy Shied, Ciara Stigen, Marge Watry
In Attendence by phone: Nicole Bennett Engler, Anne Blaes, Freda Carlson, Paula Colwell, Michele Fedderly, Karen Karls, Patti Swanson
Next Meeting Date, Time & Location: To Be Determined: January 2008
SUMMARY
- Cancer Plan Minnesota’s Quality of Life Chapter was reviewed
- Possible project ideas were brainstormed
- An online survey will be created to determine which project ideas have enough interest for groups to be formed to carry them out
Topic |
Key Points Raised |
Decision/Action |
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Introductions
(Anna Ourada) |
· Introductions, Review of meeting objectives, Background, MN Cancer Plan Quality of Life Objectives reviewed |
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· Advocate at MN Legislature for Medicare or UCare to pay doctors for their time completing a document that outlines a comprehensive cancer survivorship plan including descriptions of medications and side effects, follow up tests needed, guidelines, etc.
· Create a Survivor Care Plan showing ROI
o Primary Care Physicians feel there is a need for improved communication
o A partnership with the ONS & AAFP could be beneficial
o Greater MN health systems feel there is a need for improved communication
· Spread information about palliative care programs in MN
· Hold a survivorship conference
· Promote a device like Vital Key, a flash drive containing all patient medical records
· Highlight the importance of physical activity
· Remove transportation to treatment barriers especially for rural Minnesotans
· Create a survivorship clinic
· Look into telemedicine
· Create a Community Health Worker training to provide a link to resources for un- and under-insured people
o Create curriculums for doctors and/or CHWs around palliative care
· Look at Cardiac Rehabilitation model for Physical Activity / Reconditioning for survivors of cancer |
· Anna will email a link to a survey to all people interested listing project ideas to determine what project(s) the group(s) will pursue |
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Next Steps |
· Respond to the project idea survey with your top interest(s) & set next meeting |
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